Dylan really needs some in-home nursing care to hep with his many problems – let’s make sure he gets it.
Dylan was born in February 2005 after a normal pregnancy and start to labour. As a result of his birth he was diagnosed with severe grade III HIE (hypoxic ischaemic encephalopathy) and following that with Cerebral Palsy and Epilepsy.
When he was 9 months old he had failure to thrive and started to feed through a Nasogastric Tube. He had a few hospital admissions with pneumonia in the years that followed but was fairly robust and healthy.
In April 2009 he had very bad pneumonia and was intubated and airlifted to Monash Medical Centre ICU. At some point during this admission it was found that he had nasty bacteria in his chest which is notoriously difficult to get rid of.
In May 2009 he had a PEG (feeding tube) inserted in his tummy – this was meant to make giving him food easier but he got very sick and had an abscess removed from his abdominal cavity and came very close to dying.
As a result of the bacteria and subsequent surgery he has been chronically ill with episodes of acute pain and infection requiring many admissions to hospital and at least 10 visits to ICU.
For the past 20 months he has also missed out on essential therapies like physio, occupational and speech therapy as he has been too unwell to travel regularly to early intervention or school.
In May 2010 Dylan spent another 13 days in ICU following a viral infection that left him with permanent lung damage and he now has oxygen 24 hours a day.
Dylan is an absolutely wonderful little boy and is full of giggles and smiles and loves to “chat” to people and especially likes to flirt with nurses in hospital! He has some really special people in his life who all help to make him more comfortable and able to spend as much time at home with his big brother & sister as possible.
Dylan lives with his Mum and brother and sister who are 11 and 10 years old.
To help Dyla, click here.