Rupert is just 8 years old and suffers from Adrenoleukodystrophy (ADL) a progressive neurological disorder. Rupert’s condition is deteriorating rapidly. He is no longer walking, his limbs are increasingly stiff and he has lost his vision and speech. He is now dependent on his family for all his care and is mostly bed ridden.
Rupert is no longer able to attend school but remains a happy, engaging little boy who continues to enjoy music, stories and interacting with his family and visitors.
Rupert is at serious risk of pressure concerns and skin breakdown and he desperately needs a special overlay for his mattress to keep him comfortable and to stop him getting pressures sores.
An alternating air flow overlay, called a ‘Nodec A’ has been recommended for Rupert and this appeal seeks to raise the $3,750 needed to buy one. Click here to go to the appeals page to donate to Rupert’s Appeal.
Note: This is a private appeal at the request of the family. Rupert is not the child’s real name and a stock photograph has been used.