Nate is just 3 years old. He was born on 24 July 2006 and at just a few days of age, Nate starting having seizures down one side of his body. After exhaustive testing, Nate was diagnosed with Lissencephaly – a condition which leaves children with severe neurological impairment.
Due to the severity of Nate’s condition, he will not ever have the ability to walk, talk or eat independently. He has uncontrolled seizures 24 hours a day, is fed via a PEG tube through his abdomen and requires constant care – provided by his wonderful single mum.
Nate also has hip dysplasia which can make him very uncomfortable during the night. He wakes often and needs to be rolled back over onto his side to allow him to fall back to sleep. The constant waking and its associated feelings of sleep deprivation are of great concern for both Nate and for his mum.
Through Nate’s Appeal we hope to raise $3,800 towards the cost of a Jenx Dreama Sleep System (a customisable configurable mattress system) that will provide excellent postural support for Nate, keeping him in the correct, comfortable position throughout the night. This, and some well-deserved uninterrupted nights of sleep, is vital for Nate’s well-being – and that of his mum too.